Jameela Jamil opens up about Ehlers-Danlos Syndrome diagnosis, impact in TikTok video

Jameela Jamil has been open about the reality of living with a rare tissue disorder, begging fans to go check themselves out.

In a video on TikTok, the British actress told viewers about her experience with Ehlers-Danlos syndrome (EDS) and presented some of the physical effects of the condition.

Jamil pulled her cheeks away from her face to show how tight the skin on her face was.

“It’s not an app, it’s not a filter, it’s just my face. Look how elastic it is,” she said.

Watch the video above.

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Jameela Jamil reveals the impact of Ehlers-Danlos syndrome.
Jameela Jamil shared about the reality of living with Ehlers-Danlos syndrome. (TikTok/Jameela Jamil)

“The reason it’s so stretchy is because I have something called EDS, Ehlers-Danlos Syndrome.”

good place the star explained how the syndrome affected her life and how lucky she was to be diagnosed so early in her life.

“It involves my joints,” she continued, straightening her arms.

“As you can see, nothing goes right, everything goes right and wrong. If you are a child with this condition, you should not participate in contact sports.

“I was lucky to have been diagnosed with it at the age of 9, so I was able to avoid a lot of things that could make me sicker in old age.”

Jameela Jamil wears a purple lilac dress on a yellow background.  She is in a crouching position, petting a small brown dog that also appears in the photo.
“I’ve been lucky to have been diagnosed with this condition since I was 9 years old so I’ve been able to avoid a lot of things that could make me sicker in old age.” (Instagram)

Jamil also notes the dangers of catching EDS without even knowing it.

She said the disease affects “every part of your body” including “bruising, bleeding, wound healing” and even pregnancy, with people with EDS requiring special attention. especially during childbirth and caesarean section.

Many TikTok users commented to thank the star for spreading awareness about the condition.

“Thank you for using my platform to do this. I have EDS!!!!!!” one person wrote.

“After 15 years the doctor fired me, I got my dx a few years ago thanks to you talking about EDS online. You changed my life, thank you,” another comment received a response from Jamil.

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Jameela Jamil in red and black, smiling at the camera
Jamil recognizes the dangers of having the disorder without even knowing it. (Instagram)

“Oh my god, that was amazing. I’m sorry I didn’t talk about it more. I got a global rage about my health and stopped talking about it. Well done buddy,” she wrote.

In 2020, one the writer accused Jamil of having Munchausen syndromeshows an individual repeatedly and intentionally pretending to be mentally or physically ill to get attention.

Jamil, whose health history includes battles with cancer, car accident injuries, mercury poisoning, seizures, encounters with “killer bees” and EDS, refute these claims publicly at that time.

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The She is heavy The star alluded to this incident when she posted her most recent TikTok video to Instagram.

“The internet made fun of me about my health problems, and it made me want to commit suicide at times,” said Jamil. video captions

“But they’re just a bunch of idiots less than a hundredth of our strength, they can’t imagine surviving what we survive, so they choose to spark us all about it. .”

Despite the stigma and negative criticism she says she has faced, the actress explained that she has yet to speak out about EDS.

“I am not speaking to IMPORTANT people on this extremely important topic because a lucky group of people have good health, no soul,” she wrote.

“Let’s raise awareness of this topic together and save some damn lives!”

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